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About Me
- Maria
- God has blessed me tremendously with an amazing husband, Doug, and two gorgeous little boys, Gavin and Joey. It has always been a dream of mine to have a large family but God may have other plans. I had a series of 6 consecutive early miscarriages when trying for baby #2. We are currently trying for baby #3 after our 7th miscarriage. I am faithful that God's plan is perfect, even when I am not happy about it. I love comments and meeting new followers so please don't be shy!
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Tuesday, March 6, 2012
Answers
Today was the big day. The day that was supposed to be about hearing a wonderful sound of a heartbeat, that was transformed into an appointment for answers. Why can a perfectly healthy woman have 7 miscarriages? The general tests told us nothing substantial. The more extensive tests came back normal. The diagnosis of "bad luck" isn't going to fly anymore. Or is it?
I was so nervous for this appointment. I think it was out of shear nervousness that I made time to put on make up, paint my fingernails, and put on earrings. If you don't already know, I can do a weeks worth of laundry and not fold anything other than underwear, pajamas, yoga pants, and t-shirts. Today, I was getting ready as if I was on my way to a job interview. Okay. Not a job interview for a position at a law firm, but a well regarded gas station.
As I arrived at the office, I was relieved to see an empty waiting room. I sat and at the same moment I got out my phone to check facebook, I was called back. I was shocked when the took me to an exam room since it was just a consult and there was no need to get naked. Thank goodness because I totally didn't shave my legs! I waited in the not so comfy chair in the corner of the room that is intended for the husbands to squirm in as their expectant wife gets a pap smear. I looked at my phone, did some facebook-ing, read a pamphlet and listened to the other exam room doors open and close.
About 40 minutes later, in walks the white coats.
My RE and a resident sidekick comes in the room and we get right right to the small talk. Then, a deep breath and I show him the list of tests that I came across regarding recurrent losses. I watched my doctor transform from a gentle practitioner to a very practical fact-based scientist. The three of us hunched over the list of tests and my file and located 5-8 tests out of the 25-30 tests I was inquiring about. Then, just as I fully expected, he explained that he could run the remaining tests but they would be expensive, and not exactly give me the answers I am so desiring. Not to mention, he wouldn't treat me any differently even if the results told us something. The bottom line is that there isn't any scientific, studied, or proven statistics that any of these immunological diagnoses cause miscarriages and even less proof regarding the treatments will work.
My doctor did agree that there was a time that doctors didn't know that they needed to wash their hands before surgery. They didn't know what a germ even was! So, there is no reason to believe that 100 years from now there will be people saying, "I can't believe that doctors back then still had to deal with recurrent miscarriages! They had no idea that Natural Killer Cells needed to be sensitized!"
So, what did I learn? Not a lot. I knew going in that these thing aren't exactly looked kindly upon by the majority of the medical community. I knew that it was a long shot.
Where to go from here? I haven't decided yet. I still need to process everything and do a little more research. My doctor did say that he is more than willing to continue treating me (not that he does much other than run betas and do ultrasounds) but will not monitor any meds or treatments recommended by any other doctors. He compared it to someone who sees an acupuncturist. He is all for it, but he isn't going to let an acupuncturist tell him how to make his patient ovulate. I get it.
I'll be honest. I cried. I couldn't hold it back. I get it, but my heart still wants answers. My heart wants me to find a solution even if it means trying something that isn't proven. His response just made me cry a little more. He explained, "We all want answers. We all want to know why some things happen. But sometimes there just aren't answers available. Like, why does a perfectly beautiful child get cancer and die? Sometimes there just aren't answers."
I was so nervous for this appointment. I think it was out of shear nervousness that I made time to put on make up, paint my fingernails, and put on earrings. If you don't already know, I can do a weeks worth of laundry and not fold anything other than underwear, pajamas, yoga pants, and t-shirts. Today, I was getting ready as if I was on my way to a job interview. Okay. Not a job interview for a position at a law firm, but a well regarded gas station.
As I arrived at the office, I was relieved to see an empty waiting room. I sat and at the same moment I got out my phone to check facebook, I was called back. I was shocked when the took me to an exam room since it was just a consult and there was no need to get naked. Thank goodness because I totally didn't shave my legs! I waited in the not so comfy chair in the corner of the room that is intended for the husbands to squirm in as their expectant wife gets a pap smear. I looked at my phone, did some facebook-ing, read a pamphlet and listened to the other exam room doors open and close.
About 40 minutes later, in walks the white coats.
My RE and a resident sidekick comes in the room and we get right right to the small talk. Then, a deep breath and I show him the list of tests that I came across regarding recurrent losses. I watched my doctor transform from a gentle practitioner to a very practical fact-based scientist. The three of us hunched over the list of tests and my file and located 5-8 tests out of the 25-30 tests I was inquiring about. Then, just as I fully expected, he explained that he could run the remaining tests but they would be expensive, and not exactly give me the answers I am so desiring. Not to mention, he wouldn't treat me any differently even if the results told us something. The bottom line is that there isn't any scientific, studied, or proven statistics that any of these immunological diagnoses cause miscarriages and even less proof regarding the treatments will work.
My doctor did agree that there was a time that doctors didn't know that they needed to wash their hands before surgery. They didn't know what a germ even was! So, there is no reason to believe that 100 years from now there will be people saying, "I can't believe that doctors back then still had to deal with recurrent miscarriages! They had no idea that Natural Killer Cells needed to be sensitized!"
So, what did I learn? Not a lot. I knew going in that these thing aren't exactly looked kindly upon by the majority of the medical community. I knew that it was a long shot.
Where to go from here? I haven't decided yet. I still need to process everything and do a little more research. My doctor did say that he is more than willing to continue treating me (not that he does much other than run betas and do ultrasounds) but will not monitor any meds or treatments recommended by any other doctors. He compared it to someone who sees an acupuncturist. He is all for it, but he isn't going to let an acupuncturist tell him how to make his patient ovulate. I get it.
I'll be honest. I cried. I couldn't hold it back. I get it, but my heart still wants answers. My heart wants me to find a solution even if it means trying something that isn't proven. His response just made me cry a little more. He explained, "We all want answers. We all want to know why some things happen. But sometimes there just aren't answers available. Like, why does a perfectly beautiful child get cancer and die? Sometimes there just aren't answers."
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3 comments:
Been thinking of you a lot. Sometimes there are no answers. It's cheesy, but sometimes God's gifts are the prayers that go unanswered for a while.
Sorry you didn't get the answers you were hoping for I know exactly how you feel we dished out a few grand on testing and still really don't have good enough answers as to why I have lost 20 babies theres no reason at all to lose that many and not have a reason sending prayers your way hugs
thinking of you and wishing things were different. thank you for the love and support you left for me. you'll never know how much i needed it today.
7 mcs is just trauma on top of pain and more trauma. thinking of you and hoping you find your way to the other side again, with answers. I ache for you and your family and all you have been through.
xoxo
lis
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